I participated in an Influencer Activation on behalf of Influence Central for Scleroderma Awareness. I received a promotional item to thank me for my participation.
Words like breast cancer, mental illness, and heart disease are ones that strike up fear within most of us, and with good reason. We hear about them often and realize the dangers and risks each of them can mean to our health. The majority of us know someone on a personal level that has experienced one of the above illnesses and watched as it changed the family for forever, either pulling them together or tearing them apart. Now think about this, have you ever thought about the many diseases that affect families every day that are not commonly heard of, if ever? Medical conditions like Scleroderma are rarely made mention of, because it is not as commonly diagnosed like other conditions.
Scleroderma (Sclero-hard, Derma-skin) is an autoimmune disease that has no known cause and at this time has no cure. It is a disease that affects 1 in 906 people, and 80% of those diagnosed are female. As with most illnesses, Scleroderma can affect people in different ways. Some symptoms may be seen outwardly (tightening of the skin), while others may be strictly internal, like scarring in the lungs or renal crisis.
Unfortunately, my family and I fall under the category of knowing someone who has Scleroderma. The person I am speaking of is my mother-in-law, at least one of them. I often tease with people that they are lucky they only have one MIL, but the truth is, I am lucky as well.
Susie, my husbands stepmom, has battled with Scleroderma since before we first met in 2003. She is the type of person that inspires me with the way she handles her disease. She not only lives life, she lives it to the fullest, never letting her disease define who she is. She is active, enjoys her family, and sets an amazing example for her 12 grandbabies to live by. She is a beautiful woman both inside and out and I am lucky to have her in my life.
Since I have learned about Scleroderma through Susie, I wanted to sign the pledge to raise awareness about Scleroderma with others. Hopefully by raising awareness both in person and online, researchers can get access to the resources they need to find a cure. Help me to spread the word by signing the pledge to share about Scleroderma with someone else. By spreading the #Hardword, we can make a difference.